In the year 2012 I experienced unusual tightness around both my kidneys. As I visited one doctor after the other, trying to figure out the reason for the pain, I was referred to a nephrologist by a family friend who was a little worried about my rising creatinine value. A CT scan revealed that I had Retroperitoneal Fibrosis (RPF).
What Is Retroperitoneal Fibrosis?
It is a rare condition that’s also known as Ormond’s disease. It occurs when excess fibrous tissue develops in the space behind your stomach and intestine called the retroperitoneal area. Fibrosis is the growth of excess connective tissue, which causes a mass to form. This often causes compression and blockage of the ureters, which are the tubes that carry urine from your kidneys to your bladder.
Tissue masses can block one or both of your ureters. When urine backs up in the ureters, harmful materials can build up in your blood and kidney damage can result. The disease can cause kidney failure if it isn’t treated.
I was operated twice within a span of one year in one of Mumbai’s top hospital to clean the affected areas. The doctors couldn’t, however, assure me that the RPF will not reappear again and prescribed me Tamoxifen — apparently a cancer pill that had a 20 per cent chance of helping me recover.
Worried I may see myself cut open regularly I was looking for other options when a good friend of mine asked me to visit Dr. Ibrahim Sirkhot’s kidney clinic in 2014.
It proved to be a turning point for me as Dr. Sirkhot’s medicines stabilized my creatinine and also removed the swelling from my kidneys. Apart from his medicine, it was his reassuring manner which gave me the confidence of recovering.
I wish him all the best for the future!